Published in blog “The Bald and the Beautiful?”
Before I left Adelaide to live in the country I was fortunate enough to meet a gorgeous young woman called Mel at a Alopecia support group dinner. Mel told me about a $5000 government grant that South Australians suffering from Alopecia are eligible for. Mel also told me that I needed to go and see Angela in Melbourne as she’s the woman to see about a decent wig. Read more
Alopecia sufferers push to drop GST on expensive wigs – Watch video
11 November 2016
STELLA Hammet was just four years old when her hair started falling out.
The 13-year-old from Carnegie has alopecia, an auto-immune disease where the body’s immune system attacks the hair follicles. There is no cure. Read more
Alopecia Girls 2015 – Created by Kiah and Kaycee Lang at the National Alopecia Areata Foundation’s 30th Annual Conference in Garden Grove, CA.
Christos Kyrgios talks to us about what it was like growing up having Alopecia since he was 5 years old. He meets a young Alopecia sufferer, Omar Abdo, through Instagram. When the two meet at the French Open tennis tournament to watch Christos’ brother Nick Kyrgios play, Omar is inspired to take his hat and wig off for the first time in over a decade. Omar emotionally shares with us the impact this meeting had on his life and how inspired he is now after spending two days with Christos. This is a heartwarming and inspirational story about self actualisation and the understanding that your mind can be your worst enemy as well as your greatest asset.
Angela Christiano PhD is a professor of Molecular Dermatology at Columbia University who studies inherited skin and hair disorders. She has recently discovered the genes implicated in alopecia areata, the hair-loss disorder that she herself suffers from.
AAAF now operates Fridays from Sinclair Dermatology at Level 3, 2 Wellington parade, East Melbourne. This is a new adventure in providing a one stop shop, show casing an array of Alopecia products and services. Feel free to drop in and say hello, if you’re interested in volunteering your time let me know.
The Tell Your Story competition closes June 1st, with the draw occurring at the Trivia Night. Your story will be used on AAAF website as well as promotional material for doctors, psychologist, hairdressers and general awareness programs run by AAAF.
We still have tables available for the Trivia Night: http://www.aaaf.org.au/event/aaaf-victorian-charity-trivia-night/
A big thank you to all of those who have donated items for our Silent auction. All money raised from this night goes towards Medical Research – with AAAF trying to raise enough money for a PHD student in 2015 to research DNA transplants for eyebrows.
Some great bargains to be found with starting prices from 30% of RRP.
- 1 Nights’ accommodation with parking at Quest Sth Melbourne
- 1 Australia Basketball Jersey signed by 2012 Olympic team
- Signed 2014 Hawthorn Jumper
- Vouchers, Melbourne Museums, 3 park pass Phillip Island, Puffing Billy, Children’s farms, Adventure Park, Bounce, Melbourne Stadium, Old Melbourne Goal, Polly Woodside, Paintball, and more
- Variety of Cosmetic Hamper Packs
- Meal Vouchers- Cuckoo restaurant Olinda – Lobster cave
- 2 X Hair Hats
- Autographed books – Tim Winton, John Safran
- Home Items, Cooking items
- Electrical items, Camera
It is still not too late to donate if you have a service or item to be included.
The psychological study being conducted this year by PHD Student Dr Jennifer Davis is on “The effects of Alopecia Areata on the Family Unit”. Jennifer will conduct personalised interviews with each family member. If you are interested in participating please contact me. The interviews will commence in June.
If you would like to be removed from our communications please send a return email.
Michelle Law did a story for the Sunday Mail regarding a TEDx conference held in Melbourne where she spoke on the theme of women.
You can watch Michelle’s video here:
VICTORIA FROM SWEDEN
“Being a “wigkid’, I was always afraid of people’s reactions.What would they think when they saw a bald child (me). I was always terrified of losing my hairpiece if I did any rapid movements…”. Read Victoria’s story as reported in the March 2013 newsletter.